I started this blog shortly after getting home from hospital in the beginning of 2017. I though creating this blog to work through all the chaos that I now call life. I tried my best to cope with my new life as best as I could, but I gave up and shut down. Dealing with being newly paralyzed, losing my pap and other life events I just couldn’t take anything else. I truly didn’t care I was praying for it to end.
I then laid in bed for a little over two years, not even getting into my chair. Only seeing the sky by going to the ER on a stretcher. As time went on my health was declining, I wasn’t being taken care of properly ended up moving a few times. Fast forward to April of 2021, I ended up with a bad infection. While in the hospital fighting this infection, I not knowing would start talking to the women that would change my life.
Now the day before I went into the hospital, I started having issues swallowing, thinking it was due to a preexisting issue I didn’t panic. I was told by someone in speech and swallowing that she didn’t see an issue, so I said fuck it and didn’t say a word.
I knew something was wrong and I was so sick I felt like I was dying. I was truly that sick. The doctors gave me antibiotics and they thought they beat the infection and sent me home. I was still having these swallowing issues. I couldn’t get anything down at all. I would choke for hours trying to swallow anything. It became so bad I could only get watered down instant potatoes and soup you could drink down. I got brave one November day in 2021 and end up in the hospital thinking it was just food in my throat.
They found a plastic fresh cap from a med bottle in my throat, which had been in there since April. So, this was stuck in my throat for months. I honestly thought I was about to end up with a feeding tube again. I went a year with one and was unable to eat. I absolutely didn’t want this to happen.
Now meeting someone for the first time can make you panic. I need to add that I am paralyzed and haven’t been out of bed for two years. She certainly has changed my life and has made me want to keep fighting.
So, in November 2021 I ended back in the ER they said I had another UTI. I spent 5 days while they did observation and antibiotics. While being in the hospital OT and PT came asking if I would like to get in the chair to sit. This is a big issue as I had not sat in anything in 2 plus years, I believe I last 30 or so seconds. I again got sent home on another antibiotic.
Shortly after fighting I ended up back in the hospital in March of 2022 and they said I was antibiotic resistant but there was a new drug trial and would need a pic line. After some time in the hospital, they said that Tara could finish the pic line meds at home.
I knew I needed a big change and soon after getting out of the hospital, we got and moved into our own place. A lot has happened since the move and will blog about all this very soon. So much has happened since the move.
